Saturday, June 4, 2011

CWB Community put the heat on Police to control speeding drivers:

Dear All:

Following the note yesterday morning and some of your emails to the Police
I'd like to give you an update and also to let you know that the message
has been received loud and clear ... so unless you have a specific traffic
incident to report officially (i.e. number plates, time, dates etc) there
is no need any more to write to the Regional Traffic office on this matter.

The SSW Village Affairs Committee chairman Donny Lam has offered to be the
liaison with Police on this issue.

As a result of your concern, Donny has already informed the local District
Police Community Relations Officer (who will no doubt raise the matter with
the Regional Traffic office) as well as our local District Council rep
Peter Lau, who also happens to be the chair of the Sai Kung District
Council Fight Crime Committee. The Regional Traffic office has already been
in touch with Donny as well following your emails.

On the Police side, the accident in question is being investigated by their
special investigation team, which handles serious incidents and reflects
the concern they have about this accident. The Snr Superintendent in charge
of the regional traffic team has also promised to raise the matter with the
Sai Kung traffic and transport committee.

So, the message is clear at several levels and channels that residents are
very concerned about the accident and want some action to be taken to help
stop it happening in the future.

If there is anything specific you want Donny to raise with the Police, pls
send him an email on: donny603@gmail.com

In the meantime, I have also had a chat with and e-mailed the Snr
Superintedent - who has been very helpful and understanding - to let him
know that Donny will be the point of contact and that the residents are
concerned about the safety of the road - especially late at night when
these morons are zooming around with careless abandon.

And if anyone noticed last night, there was in fact a speed camera on CW
Bay Road on the straight stretch of road near SSWan turnoff, which is one
of the blackspot sections of the road where the racers really crank up the
speed.

Hope this approach is OK with all.

bestest,

brett
------------------------------------------------------------------------------------------------------------------------------------
 
Written by Martin Robertson:

All,

we have a serious problem with late night / early morning 'boy racers' on ClearwaterBay Road.

The most recent case involved Ginny and Andy Malbon (Ginny is one of the photographers who was so supportive of the Stella Standing Tall campaign). They live at Seacrest Villas in Po Toi O. Last weekend, a boy racer smashed into their car at high speed, whilst driving on the wrong side of CWB Road. Andy has now been discharged from hospital, still in a lot of pain, but Ginny is in intensive care, undergoing operations on her legs, and it seems she will be incapacitated for some months.

Most people i know in CWB know someone who has had (or who was close to having) an accident due to these crazy drivers. This happens so frequently, I believe we need to pressure the police to add speedbumps to the road and / or have traffic police on patrol every Friday / Saturday / Sunday night.

Dawn and I discussed with Brett, who has raised the issue with Donny Lam. It will be discussed during the village meeting this weekend. 
Martin and Dawn Robertson

Wednesday, April 20, 2011

An update on Stella, from Marcel & Alison

Hi Friends,

We thought you might like an update on what Stella has been up to since she has been home…We have now been back in Hong Kong for a little over a week- and what a busy week it has been!
Stella has had fun playdates with her little friends and a few walks around the village to let out all her energy!  At 14.5kgs, it was a workout to hold her up and keep her balanced on the little hills in Sheung Sze Wan.  However, she is much less clumsy since the surgery so it is a lot easier to walk with her and it is now enjoyable rather than exhausting and stressful.  She is also a lot more interactive since the surgery, so she is enjoying her playdates a lot more and her friends seem to like her company too.

We also had a few doctor appointments to get her treatment back on course in Hong Kong.  There will be no major changes to her medication right now as we are waiting and seeing if her few daily seizures settle on their own.  She only seems to have them after waking in the morning (the brain is extremely volatile when it goes to sleep and when it wakes- think of shutting down & turning on a computer), but the seizures are very short and do not seem to affect her.  We can live with those types of seizures.

Stella also met with a clinical psychologist at the Duchess of Kent Children’s Hospital- her goal was to assess Stella’s cognitive, emotional, behavioral and physical condition.  Her conclusion is that Stella is only a few months behind her peers and she shows no signs of autism- Stella’s seizures, anti-seizure medications and TSC put her at high risk for developing autism. Marcel and I were so relieved and happy to receive this feedback.  We are hoping that with the benefits of the surgery and intensive therapy, she can catch up to her peers since the delay is so small.  Stella’s most significant issue is her lack of speech, so we will put a large amount of resources and time towards speech therapy for the time being.

Since we’ve been back, we have been in touch with various therapists and hope to get Stella started on intensive therapies after the Easter holidays.  A big thank you to Emily V. for helping with that as she has been able to find therapists that will (hopefully) come to our house.  Stella’s existing school/ therapists are also working with us to consolidate and prioritize her classes so that I am not running all over town all day- I wouldn’t mind this except that I am also trying to keep our 4 year old’s life as normal as possible.  A few other folks in similar situations have also reached out to us, offering advice on how to choose the best therapists and how to economize the therapies. 

Unlike a lot of you out there, we will be staying home for the Easter holidays.  

From our family to yours, safe travels and have a lovely Easter holiday!

Alison, Marcel, Sophie & Stella xxxx


Monday, April 18, 2011

Thanks to all the wonderful businesses that have given so generously.

Stella Standing Tall would like to thank & recognise so many wonderful companies that gave & supported us at our various charity events.
Thank you for making our auctions, raffles & door prizes so successful.

We look forward to continuing to support your business!


DANIEL McARDLE DESIGN
danmcardle@mac.com
M: +852 6012 7376

GINNY MALBON LIFESTYLE PHOTOGRAPHY

POLHEENA VILLA – Sri Lanka

MAXXIUM

BELINDA BATH IMAGES

GYMBOREE

NUAN CASHMERE

KAYAK & HIKE LTD

FRINGE CLUB

LUNCHBOX THEATRICAL PRODUCTIONS

KINDERMUSIK

BENEFITS COSMETICS

CARTOON NETWORK

BLOOM & GROW

ESCAPADE SPORTS

BLANK – Custom Art

VILLA BALADEWA - Bali

SIDEWAYS DRIVING CLUB

BAAN PURI – Koh Samui

BABUSHKA

FAT ANGELO’S

PAUL GERRARD HAIR STUDIO

GRAND HYATT HOTEL HONG KONG

HOCUSCADABRA

HONG KONG DOLPHIN WATCH

ELEANOR McCOLL

MILK MONSTER LAUGH PHOTOGRAPHY

TOYS R US

TEVA
  
HASBRO

JUMPSTART MANDARIN

SAVVY STYLE

PETERKIN ASIA

SENSE OF TOUCH, SAI KUNG

BANG SUSTAINABLE FAIR TRADING

SOCATOTS


THANKS ALSO TO:

Dasgupta Family – JW Marriott Resort & Spa Phuket
Kate Phillip & Jane Evans – Cooking Sensations!
Terrence Annuamunthodo
Sue Parsons – Rugby Legend Autographed Photos
Eileen, Jason & Jaspers – Cruise n’ style
02 Hair Studio
Universal Studio

Thursday, April 14, 2011

THANK YOU TO ALL OUR VOLUNTEERS & HELPERS!

To recognize some very special people, without you the past few events would not have been possible or so successful, 
for this we THANK YOU!

Our Brilliant Event Manager:
Kate Phillip

The very special Pink Ladies:
Eileen, Di, Sarah, Kellie & Dawn

The Gorgeous Bar Staff
Fiona, Debbie, Svava, Abi, David, Heidi, Adele, Julie, Katie, Chris, Nicky,
Gerry & Melanie

Our Welcome Board Co-Coordinator:
Tania

Technical Support Guru’s:
Jason, & Ripa

The best sourcing agent in town:
Ann

Finance Professionals:
Linda & David

Kitchen Management:
Catherine & Alex

Kitchen Superior Staff:
Wilma, Roel, Jean & Kenti  

Waiters/Waitresses
Zach, Ashley, Courtney, Josh, Harry, Ceri, Adele, Ruby, Gracie, Alex,
Allie, Hayley & Edan


Video & Photography (Yoga)
Mike & Greg

Yogi Masters:
Julie, Jenny, Emma, Esra, Mindy & Jenny


Hippest DJ in the land:
Andrew - WAKITUP!


Our Professional Business partners

Gingers Catering
http://www.gingers.com.hk/

Brunch Club
http://www.brunch-club.org/

The Space
http://www.thespace.hk/space/

Pentium Lighting
http://www.pentiumlighting.hk/

Our  Professional Photographers

Michael Loh Photography
http://mwkloh.photoshelter.com/

Ginny Malbon Photography
http://www.ginnymalbon.com/lifestyle_photography/Home.html



THANK YOU FROM:

Lisa, Lynn & Sharyn
Stella Standing Tall Community

Wednesday, April 6, 2011

Some of the excellent auction items up for grabs 07 April


Hi friends of Stella,
 
As you dust off those gorgeous heels/remember vaguely you have something on/pull out your favourite frock/check your diary in preparation for tomorrow night’s cocktail party fundraiser for Stella Sipma,  we thought you’d like a quick taster of what’s in store.
In addition to several great door prizes, we have a fabulous line up of both silent and live auction items.
Once you’ve enjoyed your first champagne, cold beer or glass of red, look out for the lovely ladies wearing ‘Stella pink’ sashes.  They can give you information about and take bids on the 23 silent auction lots.  Items in the silent auction range from accommodation in Sri Lanka and Phuket to artwork, childrens’ gifts, concert tickets, cashmere and wine.
The live auction will begin at 9:15pm, with the amazing Wendy Herbert, our MC, calling for bids on
·         Cruise in style – sunbathe, relax and lunch.  Enjoy a fun day out on the water for 6 people, cruising the Sai Kung islands in style on a 30ft-power boat captained by the devastatingly handsome Jason Bowers.  Includes lunch with drinks at Jaspas Beach Club on High Island.
·         Exceptional Koh Samui Villa.  Holiday like a rock star at the incredible Baan Puri, an absolute beachfront villa complete with infinity pool, swim up bar and full staff . Villa can easily accommodate up to twelve.  www.baanpuri.com
·         JUSTIN BIEBER……two tickets to his 13th May concert in Hong Kong, as well as two CDs and an autographed photograph. 
·         Villa Baladewa, Bali.  Seven indulgent nights at the luxurious Villa Baladewa in Umalas, Bali – this contemporary styled, fully-staffed villa has four en-suite bedrooms, and is set in beautiful tropical gardens complete with stone-lined swimming pool and a bale pavilion perfect for massages.   www.villabaladewabali.com
·         Sideways Driving Club.  Experience Hong Kong’s ultimate driving experience.  With 13 networked simulators, Sideways is a virtual racing centre that puts you in the driver’s seat.  Bid on this one hour private party for 10 people.  http://www.sideways-driving-club.com
·         One-of-a-Kind Trunki. It’s not often you can buy an “only one in the world” item, but this artist-designed Trunki is your chance.  Trunki is the world’s first ride-on suitcase that is designed for children to Pack, Sit-on and Ride.

So be prepared to raid the piggybanks, pilfer the households’ wallets and stock up at the ATM;  auction prizes can be claimed with either cash or cheques – and help Stella and her family get back on their feet.
See you tomorrow night from 7:30pm at Space – 210 Hollywood Road Sheung Wan; nearest cross street Possession Street.
Lisa, Lynn & Sharyn xxx

Thursday, March 31, 2011

News from Marcel, just before third surgery:

Sorry - bit late in posting this one.  SST xx

Dear SST Team,

Thank you for the wonderful package you put together for us. We are indeed night owls sometimes.
I love the wristbands, toys, map, pj's, puppets and all the other stuff you've got in there, certainly refreshes our entertainment options for stellas bedside!
Stella is getting fed up now with her old toys, she also loved the little fairy-star wand. You put real thought into it, thank you.

Stella was walking around the floor the day after she had brain surgery, some determination, eh?
All the nurses are fawning over her.

I still can't wrap my head around all you have accomplished for Stella, you've got some serious skills there.
I wish I was there to personally thank you, but that will have to wait.

Today is the last operation, hopefully everything will go according to plan like the last two times, it feels like we are rolling the dice each time.

Hope you and your families are well.

Marcel

Wednesday, March 30, 2011

Hi Lisa, 
How is Imogen? Lynn said that you had to dash to her school the other day as something had happened...

And finally, below us a link to a bio about Stella's neurosurgeon, Dr. Howard Weiner.  I thought we could paste it into the Facebook page.  He's an amazing surgeon and one of the most compassionate doctors that I have ever met.  More importantly, he is doing research on Tuberous Sclerosis, trying to figure out the best way that surgery can help patients and to understand exactly how TSC affects the brain.


X Alison

Ps.  Stella's care package from Hong Kong arrived today.  Thank you so much for the beautiful pajamas.  They have fun and lovely embroidery.  They will be great for hong kong's hot summers.